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Welcome JECiarlo

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Welcome JECiarlo

Post by Admin on Wed Apr 30, 2014 6:37 pm

Welcome to HEART JECiarlo. Please tell us a little about yourself.
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Re: Welcome JECiarlo

Post by Tom price on Wed Apr 30, 2014 9:32 pm

Welcome!  I messaged JE over at Mended Hearts, and invited him over.....
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Re: Welcome JECiarlo

Post by Guest on Thu May 01, 2014 7:33 pm

Welcome to HEART.

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Re: Welcome JECiarlo

Post by JECiarlo on Fri May 02, 2014 9:29 am

Thank You for the welcomes...I have recently been diagnosed with a bad mitral valve and I am awaiting surgery at the Cleveland Clinic in July. This came as a big surprise to me. I have always been very active, I am 48 and enjoy bicycling, running, hiking, snowshoeing and photography. I am trying to maintain my current physical health to aid in recovery after surgery...I am not letting my current condition limit me too much other than cutting back on the intensity...I am looking forward to getting past all this and on with my life as it once was...Joe

JECiarlo

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Age : 52
Location : Jefferson, Ohio 44047

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Re: Welcome JECiarlo

Post by Rachel August on Fri May 02, 2014 9:55 am

Hey Joe - welcome!

You and I are the same age....only I had a defective aortic valve

Had my surgery three years ago (also in July) - good idea to maintain your current condition before surgery - but don't worry too much about it - I ran hard up to about 4 months before my surgery (because I didn't know I had a heart condition) - then I pretty much stopped running altogether probably 3 months before surgery (because I have an over-active imagination) so I was in shape but not in top condition and my recovery from surgery was quick and straight forward. (Of course everyone is different - just saying don't worry too much)

Getting past this is more than doable.



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Rachel
OHS - July 15, 2011
Aortic Valve Replacement (Edwards 3300TFX) and Ascending Aortic Aneurysm Repair
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Re: Welcome JECiarlo

Post by Marc Thayer on Fri May 02, 2014 1:52 pm

Ran a 15k one week before my OHS....so i concur with your analysis...be in the best shape feasible before the surgery, mentally and physically.

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Aortic Valve repair, Ascending Aorta graft; 2012
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Re: Welcome JECiarlo

Post by Dave Tuttle on Fri May 02, 2014 3:56 pm

Welcome to the group Joe!! It's gotta be tough waiting for your surgery but you have the right attitude to dance through it well... Keep us posted on how you're doing, quite a few valve people here so lots of experience to tap into.


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4X CABG Feb 17, 1999 at 46 years.
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Re: Welcome JECiarlo

Post by kcy1998 on Sat May 10, 2014 12:12 pm

Joe,
Welcome! We have similar stories. Young active and seemingly healthy. As others have stated there are no gurantees. Since you have been leading an active lifestyle and stay fit you should have a speedy recovery. That was my experience.
kc

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Re: Welcome JECiarlo

Post by mikenall on Sun May 11, 2014 9:46 pm

Welcome to the group. We're neighbors. I live in Mentor. If you have any questions or need to talk, my email is sun94dancer@gmail.com. I had surgery at Cleveland Clinic in 2010 and am very familiar with the facility. I might at some point have questions for you as well - I have 2+ mitral regurgitation myself.

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Biotronik Evia DR-T dual chamber pacemaker August 2013
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Re: Welcome JECiarlo

Post by RoadKillBill on Thu May 22, 2014 5:17 am

Hi Joe

Best wishes for your upcoming surgery. I had my MV repaired 14 years ago at Cleveland. I had the old school sternotomy. There have been a lot of advancements in minimally invasive since then. Are you getting one of the less-invasive procedures? When I compared my recovery experience with the aortic valve kids, it took me longer to get back up to full activity. I don't know if I was being a wimp or if it was related to the size/location of the myocardial incision. I only offer that up so that you don't feel discouraged if you feel crappy for a while. I was back on my bike and jogging in about 4 months, but didn't start to feel really good until about 9 months. Whatever your experience, don't get too ambitious or too discouraged if recovery takes a bit. Enjoy doing what you can and take it easy until your body heals. I hope improvements in surgical technique accelerate you recovery experience.


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Re: Welcome JECiarlo

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